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NIH Letter to Tribal Leaders
NIH Informational/Consultation Session on Tribal Interests in Research Involving Human Participants
Agenda
| Schedule | Details |
|---|---|
| 3:00 p.m. – 3:10 p.m. | Welcome and introductions – David R. Wilson, Ph.D., Director, NIH Tribal Health Research Office Part One Moderated by Dr. Wilson, Director, NIH Tribal Health Research Office |
| 3:10 p.m. – 4:00 p.m. | NIH’s role in the stewardship of NIH-funded research involving individuals and populations Schedule Details 3:10 – 3:25 p.m. Brief presentations (5 minutes each) from NIH staff on NIH’s role in:Advancing research to address public health needs – Dr. Wilson, Director, NIH Tribal Health Research Office Assuring the protection of individuals and populations participating in NIH-funded research – Carrie Wolinetz, Ph.D., Associate Director for Science Policy, NIH Assuring the IRB review and approval process, including research with tribal populations – Sara Hull, Ph.D., Chair, Institutional Review Board, National Human Genome Research Institute and Director, NHGRI Bioethics Core 3:25 – 4:00 p.m. Perspectives and recommendations from participating Tribal members about NIH’s stewardship rolesPart Two Moderated by Malia Villegas, Ph.D., Ed.M., Councilmember, Native Village of Afognak Member, NIH Tribal Consultation Advisory Council |
| 4:00 p.m. – 4:50 p.m. | Perspectives and recommendations from participating Tribal members on:Ways of integrating tradition and culture in the design and conduct of research involving tribal populations Partnering with tribes in the design and conduct of research |
| 4:50 p.m. – 5:00 p.m. | Wrap up and next steps – Dr. Wilson and Dr. Villegas |
Additional NIH staff who will be listening to Tribal perspectives and, as needed, addressing questions and engaging in discussion.
- Larry Agodoa, NIDDK
- Laura Bartlett, NLM
- Petrice Brown-Longenecker, OER
- Sheila Caldwell, NIGMS
- Sarah Carr, OSP
- Dorothy Castille, NIMHD
- Christina Daulton, NHGRI
- Stephanie Devaney, OD, All of Us Program
- Kathy Etz, NIDA
- Symma Finn, NIEHS
- Valery Gordon, OSP
- Ann Hardy, OER
- Suzanne Heurtin-Roberts, NCI
- Sara Hull, NHGRI
- Robin Kawazoe, DPCPSI
- Janice Kelly, NLM
- Bill Knowler, NIDDK
- Lora Kutkat, DPCPSI
- Dina Paltoo, OSP
- Mike Spittel, OBSSR
- Karyl Swartz, CSR
- Deborah Winn, NCI
- Fred Wood, NLM