Community Engagement: Facilitate NIH-NGO interactions on ADRD

AD-Related Dementias Focus

Establish more effective communication between NIH and NGOs on activities and progress toward ADRD goals in the off-years between triennial ADRD Research Summits.

2025 14.K Achieved Establish effective communication between NIH and NGOs DN NIH ADRD Roundtable Meetings, June 2017, June 2018, June 2020, August 2021 and November 2023 Public Private Partnerships NAPA - NINDS Update: National Plan to Address Alzheimer's Disease ADRD Milestones 2/2017 NAPA - NINDS Update: National Plan to Address Alzheimer's Disease ADRD Milestones 10/2018 NAPA - NINDS UPDATE: NATIONAL PLAN TO ADDRESS ALZHEIMER'S DISEASE ADRD MILESTONES 1/2020 NIH ADRD Roundtable Meetings, June 2017 and June 2018 2016

  • Publicly post all ADRD Summit 2016 milestones and success criteria.
  • NINDS to present annually to NAPA Council on progress toward the ADRD goals/milestones.
  • Convene annual meetings during which NINDS, NIA and NGOs share activities, funding-related information, and progress relevant to the ADRD recommendations.

Summary of Key Accomplishments

NINDS participates in NAPA Council meetings with representation on the Research Subcommittee and has presented progress reports at the NAPA Council several times since 2017. ADRD Summit milestones and success criteria are publicly posted on the HHS ASPE NAPA Council website. Each year the NINDS either hosts a triennial ADRD Summit or, during non-ADRD Summit years, convenes meetings during which NINDS, NIA and ADRD-relevant non-government organizations share activities, funding-related information, and progress relevant to the ADRD milestones.

The key accomplishments summary is current as of July 2022.