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Health Equity: Monitor trends of different ADRDs in diverse populations

AD-Related Dementias Focus

Apply existing and novel surveillance methods to assess inequities, including trends in inequities, in AD/ADRD prevalence, incidence, diagnosis, treatment and care.

2031 RFA-NS-17-012: Detecting Cognitive Impairment, Including Dementia, in Primary Care and Other Everyday Clinical Settings for the General Public and in Health Disparities Populations (UG3/UH3) PAR-15-349 :Health Disparities and Alzheimer's Disease (R01) NOT-AG-21-033: Health Disparities and Alzheimer's Disease NOT-NS-21-047: Administrative Supplements to Promote Diversity for NINDS Alzheimer's Disease and Alzheimer's Disease-Related Dementias (AD/ADRD) Awardees NOT-AG-21-045: Opportunities for Research in Epidemiology of Alzheimer's Disease and Alzheimer's Disease-Related Dementias (AD/ADRD) and Cognitive Resilience RFA-AG-23-020: Building Infrastructure for Precision Medicine Research on Minority Health and Disparities in Alzheimer’s Disease (AD) and AD-Related Dementias (ADRD) (UH2/UH3 Clinical Trial Not Allowed) RFA-AG-25-001: Deriving Common Data Elements from Real-World Data for Alzheimer’s Disease and Alzheimer’s Disease Related Dementias (U24 Clinical Trial Not Allowed) 1.J In Progress Develop a system to monitor the magnitude and trends in health disparities in incidence of AD/ADRD. 2016 ADRD Summit: Health Disparities (HD) Focus Area 2: Monitoring Changes in AD/ADRD Disparities, Recommendation 3 (PDF, 901K) 2019 ADRD Summit: Health Disparities (HD) Focus Area 2: Monitoring Changes in AD/ADRD Disparities, Recommendation 3  (PDF, 2.0M) 2022 ADRD Summit: Health Equity, Recommendation 6  (PDF, 3.4M) Workshop: Toward Health Equity in Brain Aging: Nontraditional Data Sources and Innovative Tools Workshop: Investigation of "well-established" risk factors for cognitive decline and Alzheimer’s disease in Black Americans, plus a call for health equity research Workshop: Promoting Inclusion of Sexual and Gender Minority Populations in Alzheimer’s Disease and Aging Research Webinar: Illuminating Alzheimer’s Disease Genetic Architecture via Diversity: Alzheimer’s Disease Sequencing Project (ADSP) Diversity Initiative and Asian Cohort for Alzheimer’s Disease (ACAD) Workshop: The Future of Population-Based Studies in Alzheimer’s Disease and Related Dementia Research: Setting Future Scientific Priorities Webinar: Addressing the Disparities in Dementia Risk, Early Detection and Care in U.S. Latino Populations Webinar: Examination of vascular and Alzheimer’s dementias in community-based American Indians: Lessons learned from the Strong Heart Study Population Studies and Precision Medicine DetectCID VCID and Stroke in a Bi-racial National Cohort (REGARDS) Detecting Cognitive Impairment, Including Dementia, in Primary Care and Other Everyday Clinical Settings for the General Public and in Health Disparities Populations (UG3/UH3) Health Disparities and Alzheimer's Disease (R01) Select projects funded in FY21 Immune Cells in Alzheimer’s Disease and Related Dementias in the Jackson Heart Study Mind Your Risks

At least one study that applies existing and novel surveillance methods to assess long-term trends in AD/ADRD prevalence, incidence, diagnosis, treatment, and outcomes in diverse populations.

Summary of Key Accomplishments

Several NIH-funded studies are examining the prevalence/incidence of AD-type dementia or individual ADRDs in diverse populations. For example, the NINDS-funded VCID and Stroke in a Bi-racial National Cohort (aka REGARDS) is a population-based study that follows more than 6000 participants aged 75+ and is collecting data on racial and geographic disparities in dementia and stroke as well as their associated risk factors.

The key accomplishments summary is current as of July 2022.