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Support secondary analysis of data from population based and intervention studies with appropriate content related to informal and formal caregiving.
2026 PAR-15-351: Research on Informal and Formal Caregiving for Alzheimer's Disease (R21) PAR-18-596: Research on Current Topics in Alzheimer's Disease and Its Related Dementias (R01) NOT-AG-18-001: Disparities in Quality and Access to Dementia Care RFA-AG-20-037 (R01): Dementia Care: Home- and Community-Based Services (HCBS) (R01) RFA-AG-20-038 (R21): Dementia Care: Home- and Community-Based Services (HCBS) (R21) PAS-19-391: Small Research Grant Program for the Next Generation of Researchers in AD/ADRD Research: Area of Focus Archiving and Leveraging Existing Data Sets for Analyses RFA-AG-20-002: Centers on the Demography and Economics of Alzheimer's Disease and Alzheimer's Related Dementias (P30) supports center programs that conduct pilot research and produce research resources to support social research on AD/ADRD RFA-AG-20-033: NIA Behavioral and Social Research LEaders in Alzheimers Disease and Its Related Dementias (NIA BSR LEADR DP1) NOT-AG-21-020 Maximizing the Scientific Value of Secondary Analyses of Existing Cohorts and Datasets in Order to Address Research Gaps and Foster Additional Opportunities in Aging Research NOT-AG-21-047: Behavioral and Social Science Priority Areas in Dementia Care Partner/Caregiver Research RFA-AG-24-033: Dementia Care Coordination Research Center (U54 Clinical Trial Not Allowed) RFA-AG-24-037: Limited Competition: National Health and Aging Trends Study (NHATS) and National Study of Caregiving (NSOC) (U01 Clinical Trial Not Allowed) (Reissue of RFA-AG-19-019) RFA-AG-25-025: Short Courses promoting cross-national analyses using data from the International Health and Retirement Study (HRS) and Harmonized Cognitive Assessment Protocol (HCAP) (R25 Clinical Trial Not allowed) RFA-AG-25-007: Centers on the Demography and Economics of Aging and Alzheimer’s Disease and Alzheimer’s Disease Related Dementias (P30 Clinical Trial Optional) RFA-AG-25-008: Centers on the Demography and Economics of Aging and Alzheimer’s Disease and Alzheimer’s Disease Related Dementias Coordinating Center (U24 Clinical Trial Optional) 13.D Achieved DN 2015 AD Summit: 4E, 4F and 4H 2017 AD Care Summit: 3.3 2020 Dementia Care Summit: 1.8, 2.2 Blog: Innovative ideas and investigators wanted for Alzheimer's and related dementias research Blog: Summit Virtual Meeting Series to engage the dementia care community Blog: Second Research Summit on Dementia Care, Caregiving, and Services is fast approaching! Workshop: NASEM/CPOP Spring Meeting on Kinlessness, Living Alone, and Consequences for Health and Well-Being at Older Ages: U.S. and International Perspectives Workshop: NASEM BHCS Long-term Care and Caregiving, Including Measurement and Support of Informal Care Research on Care and Caregiver Support Estimating the Future Availability of Family Care for Alzheimer’s Disease in the US Transitions to Family Caregiving and its Impact on Health Indicators Decadal Commissioned Paper by Ana R Quiñones et.al.: Sociocultural Aspects and Determinants of Care for Alzheimer's Disease and Related Dementias (ADRD) among Minority Ethnic Populations (paper can be found in Meeting Materials section of meeting website) Examples of funded awards Summit Virtual Meeting Series: 2020 National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers Impact of the COVID-19 Pandemic on Patients with Alzheimer's Disease and Alzheimer's Disease Related Dementias Reducing Avoidable Nursing Home-to-Hospital Transfers of Residents with ADRD: An Analysis of Interdisciplinary Team Communication using Text Messages 2018
- Identify predictors of high-risk caregivers.
- Identify economic impact of informal caregiving on families and societies.
- Conduct cross-national comparative research.
- Identify potential buffers and predictors of healthy caregivers and positive caregiving outcomes for care recipients.
- Identify at least one novel association, target, pathway, or intervention target or approach through use of the database.
- Support research that addresses population disparities in impacts of caregiving.
Summary of Key Accomplishments
NIA has issued calls for research focused on informal and formal caregivers and for research conducting secondary data analysis to answer a variety of AD/ADRD research questions as well as supported data infrastructure projects to enable the study of dementia caregiving. Secondary data analyses using National Study of Caregiving data have addressed questions about social support and social engagement, disparities in respite use, and characteristics associated with caregiver health and wellbeing. Similar analyses of publications using Health and Retirement Study (HRS) data address topics such as physical and mental health of caregivers of spouses with dementia, prevalence and predictors of informal caregiving for people living with dementia (PLWD), and a funded study using HRS data to estimate the future availability of family caregivers of PLWD.
The key accomplishments summary is current as of September 2025.