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Support research on how health information technology affects care access, quality, and costs for persons living with AD/ADRD and their care partners, including populations disproportionally affected by AD/ADRD and/or underrepresented in research.
2029 NOT-AG-23-060: Notice of Special Interest (NOSI): Telehealth for People and Families Living with AD/ADRD 13.U In Progress DN Relevant 2023 Dementia Care Summit G&Os: 4.2 Research on Care and Caregiver Support 2024
Support at least 4 new research projects or activities that do one or more of the following:
- Examine how persons living with AD/ADRD and their care partners interact with health information technology and the associated benefits and consequences.
- Identify and describe the factors driving disparities in health information technology accessibility, availability, and utilization, including the importance of user-friendly design of patient portals to engage patients and care partners and telehealth to monitor care coordination.
- Examine variabilities in health information technology access and develop strategies to address disparities in accessibility and use across settings, including home and community, clinical, and residential care settings.
Summary of Key Accomplishments
In 2023, NIA announced its interest in supporting research on telehealth for people and families living with Alzheimer’s Disease (AD) and AD-Related Dementias (ADRD). Retrospective and new studies are expected to focus on the impact of telehealth on cost, access, quality, and timeliness of care. Prospective studies will examine telehealth care delivery methods that work well for people and families living with AD/ADRD. Other areas of emphasis include telehealth and health disparities, addressing infrastructure limitations, and the role of the health system and providers in telehealth delivery. Research supported through this initiative will provide insights into the impact of telehealth on people and families living with AD/ADRD. For example, one funded study is exploring the impact of telehealth delivery in nursing homes on the utilization, quality, and cost of care for individuals with ADRD covered by Medicare who are long-stay nursing home residents. Another study is examining patterns of telehealth provision for nursing home residents at the end of life, and the association of telehealth access, cost, and quality of care.
The key accomplishments summary is current as of September 2025.