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Expand use of community-engaged AD/ADRD care and caregiving research approaches to develop research questions, design studies, collect data, interpret results, and/or disseminate findings as it relates to the specific community’s health.
2029 RFA-AG-25-002: Consortium for Palliative Care Research Across the Lifespan (U54 Clinical Trial Optional) 13.X In Progress DN Relevant 2023 Dementia Care Summit G&Os: 8.1, 8.2 Blog: NIA is leading efforts to coordinate NIH palliative care research Research on Care and Caregiver Support
- Support at least 6 research projects or activities using or seeking understanding of the impacts of community-engaged approaches to AD/ADRD care and/or caregiving research such as projects that:
- Engage communities and persons with lived experience meaningfully throughout all steps of the research process.
- Examine the influence of study design and methodological approaches on engagement, recruitment, and retention.
- Determine strategies to facilitate equitable study sampling and representative recruitment and retention of understudied caregiving populations, including but not limited to, diverse racial and ethnic groups, male-identified caregivers, those who identify as LGBTQIA+, and those in rural and dense micropolitan areas.
- Assess the use of diverse methodologies such as qualitative, mixed methods, and design thinking approaches for advancing equitable care and caregiving research.
- Advance our understanding of culturally, linguistically, and demographically diverse conceptualizations and operationalizations of caregiving and caregiver-related identities.
- Analyze the impact of culturally acceptable and culturally responsive nomenclature on research question development, study design, and sampling, as well as on caregiver engagement, recruitment, and retention.