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Support a research program on the ethical implications of inclusion of the care partner in the care team for the person living with AD/ADRD and to translate existing methods to assess consent capacity in research with and without a study partner.
2030 RFA-AG-22-020: Triadic Interactions in Clinical Encounters Involving People with AD/ADRD, Clinicians, and Care Partners RFA-AG-22-024: Primary Care-Based Screening and Intervention Development for Prevention of Abuse in Older and Vulnerable Adults in the Context of Alzheimer’s Disease and Related Dementias (R61/R33 Clinical Trial Required) NOT-OD-22-026: Administrative Supplement for Research and Capacity Building Efforts Related to Bioethical Issues (Admin Supp Clinical Trial Optional) 13.R In Progress Support a research program on the ethical implications of inclusion of the care partner in the care team for the person living with AD/ADRD. DN 2020 Dementia Care Summit 3.8, 6.8 Relevant 2023 Dementia Care Summit G&Os: 6.3 Research on Care and Caregiver Support Projects funded under RFA-AG-22-020 Projects funded under RFA-AG-22-024 Meaningful Engagement and Quality of Life among Assisted Living Residents with Dementia
- Launch new research initiatives to support at least six new projects or activities to investigate these topics, such as those that:
- Examine the health-related outcomes, ethical implications, and/or cost-effectiveness of integration of the care partner as members of care teams for persons living with AD/ADRD;
- Analyze the ethical implications and provider incentives or disincentives for including a care partner in the care team for persons living with AD/ADRD; and/or
- Examine how the research consent process and decisions to enroll and continue in research may be dyadic or triadic, and the role of tools such as decision aids.
- Develop measures and research methods to understand the interactions within caregiving teams that include direct care workers and informal care partners.
- Conduct research on best approaches for advancing equitable person-centered care and on best approaches for supporting high-quality dementia workforce jobs.
Summary of Key Accomplishments
NIA issued a call for research applications in FY 2021 (RFA-AG-22-020) for projects proposing basic behavioral research on the communication and interpersonal relationships between people with AD/ADRD, doctors, and care partners and the ethical, health, and well-being implications of these processes. The goal of these projects, which will be funded at some point during 2022, is to lay the groundwork for behavioral intervention development in this area.
The key accomplishments summary is current as of March 2022.