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Support a social and behavioral research program to elucidate the mechanisms or sources of disparities in health care access, utilization, or quality of care for persons living with AD/ADRD and their care partners and/or develop approaches to address these disparities. This disparities-focused research should be guided by the NIA Health Disparities Framework, which includes environmental, sociocultural, behavioral, and biological levels of analysis; include all health disparities populations; and encompass a life-course perspective.
2025 RFA-MD-21-004: Understanding and Addressing the Impact of Structural Racism and Discrimination on Minority Health and Health Disparities NOT-AG-21-033: Health Disparities and Alzheimer's Disease RFA-AG-23-024: Policy and AD/ADRD Healthcare Disparities: Access, Utilization, and Quality (R01) PAR-22-092: Health Care Models for Persons with Multiple Chronic Conditions from Populations that Experience Health Disparities: Advancing Health Care towards Health Equity (R01) RFA-MD-21-004 Understanding and Addressing the Impact of Structural Racism and Discrimination on Minority Health and Health Disparities PAR-22-092: Health Care Models for Persons with Multiple Chronic Conditions from Populations that Experience Health Disparities: Advancing Health Care towards Health Equity (R01 - Clinical Trials Optional) PAR-23-112: Addressing the Impact of Structural Racism and Discrimination on Minority Health and Health Disparities (R01 - Clinical Trial Optional) RFA-AG-24-004: Estimating the Monetary Costs of Dementia in the United States (U01 Clinical Trial Not Allowed) RFA-AG-24-030: Consortium for Economic Research on AD/ADRD Prevention, Treatment, and Care Coordinating Center (U54 Clinical Trial Optional) RFA-AG-24-031: Consortium for Economic Research on AD/ADRD Prevention, Treatment, and Care (R01 Clinical Trial Optional) RFA-AG-24-033: State Dementia Care Research Center (U54 Clinical Trial Not Allowed) RFA-AG-24-036: Measures of Financial Hardship Among People and Families Living With AD/ADRD (R01 Clinical Trial Not Allowed) RFA-AG-24-050: Health Equity and the Cost of Novel Treatments for Alzheimer’s Disease (AD) and AD-Related Dementias (ADRD) (R61/R33 Clinical Trial Not Allowed) (Reissue of RFA-AG-23-005) PAR-24-273: Advancing Healthcare for Older Adults from Populations that Experience Health Disparities (R01 - Clinical Trial Optional) RFA-AG-25-007: Centers on the Demography and Economics of Aging and Alzheimer’s Disease and Alzheimer’s Disease Related Dementias (P30 Clinical Trial Optional) RFA-AG-25-008: Centers on the Demography and Economics of Aging and Alzheimer’s Disease and Alzheimer’s Disease Related Dementias Coordinating Center (U24 Clinical Trial Optional) 13.N Achieved Support a social and behavioral research program to elucidate the mechanisms or sources of disparities in health care access, utilization, or quality of care for persons living with AD/ADRD and their care partners. DN 2020 Dementia Care Summit 1.5, 2.1, 2.11, 4.1, 5.7 Relevant 2023 Dementia Care Summit G&Os: 5.3 NASEM Workshop: Mechanisms for Organizational Behavior Change to Address the Needs of People Living with Alzheimer's Disease and Related Dementias Research on Care and Caregiver Support
- Launch new research initiatives to support at least six new projects or activities that:
- Move beyond documenting the existence of disparities to instead characterize the sources of or means by which disparities exist in health care access, utilization, or quality of care for persons living with AD/ADRD and their care partners; and
- Develop and test strategies, approaches, or interventions that target the sources of disparities to improve health equity in health care access, utilization, or quality of care for persons living with AD/ADRD and their care partners. These could include modifications to policy, payment models, or community, organizational, environmental, sociocultural, or individual-level approaches.
Summary of Key Accomplishments
NIA published a call for research applications (RFA-AG-23-024) for projects designed to exploit differences in social and health care policies and programs to investigate how they might be driving disparities in healthcare access, use, and quality for persons living with AD/ADRD. The goal of these projects, which will be funded at some point during 2023, is to expand the evidence base for policymakers and other decision makers seeking to mitigate these disparities, including disparities affecting individuals living with dementia in the community, assisted living facilities, or nursing homes. NIA also recently participated in two relevant trans-NIH funding opportunities inviting research applications to advance health care equity for persons living with AD/ADRD with multiple chronic conditions (PAR-22-092) and to study structural or institutional factors that lessen or worsen disparities in access to healthcare services for AD/ADRD patients and their caregivers (RFA-MD-21-004).
The key accomplishments summary is current as of July 2022.