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The authors of this study analyzed data from 20 online focus groups conducted with older adults to investigate their understanding of research registries. They found that participants expressed unfamiliarity with the concept of Alzheimer’s research registries, confusion about eligibility criteria and their purpose, and often conflated them with individual clinical trials. Findings suggest that interventions such as messaging with familiar language can help to address lack of awareness and increase enrollment into Alzheimer’s research registries.
Samuel L, et al. What is older adults' understanding of Alzheimer's disease research registries? Findings from 20 focus group studies . Alzheimers Dement (NY). 2025 May 27;11(2):e70111. doi: 10.1002/trc2.70111.
Educate & Raise Awareness Recruit & Retain Participants 2025-08-19T00:00:00Z Registries Research Articles