Study Partners Perform Essential Tasks in Dementia Research and Can Experience Burdens and Benefits in this Role

This prospective qualitative study documented the subjective experiences of study partners in dementia research. Up to three semi-structured interviews were conducted with each of 62 study partners involved in a range of dementia studies. Content analysis demonstrated that study partners perform a range of tasks—often within the context of being a caregiver—that enable cognitively impaired individuals to participate in dementia research. These tasks present study partners with unique burdens and benefits, some of which dementia researchers and institutional review boards can address.

Black BS, Taylor HA, Rabins PV, Karlawish J. Study partners perform essential tasks in dementia research and can experience burdens and benefits in this role . Dementia 2016;1471301216648796. Published online ahead of print, 2016 May 13.

d3135b7e437c34227c73be75cc6a1b8e Recruit & Retain Participants 2019-01-11T00:00:00Z Caregivers Research Articles