Patient Engagement: The Fundació ACE Framework for Improving Recruitment and Retention in Alzheimer's Disease Research

This article outlines problems relevant to patient engagement in Alzheimer's clinical research, including difficulties in recruitment and retention, ensuring the recruited sample is representative of the general Alzheimer's population, the burden of screening failures, and new challenges related to recruiting a preclinical population. The authors described the Models of Patient Engagement for Alzheimer's Disease (MOPEAD) project, a public-private partnership promoted by the Innovative Medicine Initiative, which is comparing innovative recruitment models. Focusing on the experience of Fundació ACE, the authors suggest using comprehensive Alzheimer's disease centers is an effective and efficient way of implementing many of the discussed strategies.

Boada M, Santos-Santos MA, Rodríguez-Gómez O, et al. Patient engagement: The Fundació ACE framework for improving recruitment and retention in Alzheimer's disease research . Journal of Alzheimer's Disease 2018;62(3):1079-1090.

2bdde975e757c076125b943d1f9f4415 Recruit & Retain Participants 2019-02-22T00:00:00Z Barriers & Facilitators Research Articles