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FTD Disorders Registry

The FTD Disorders Registry helps individuals find clinical trials, studies, and educational resources related to frontotemporal degeneration (FTD) and its subtypes, including behavioral variant FTD (bvFTD), primary progressive aphasia (PPA), corticobasal syndrome (CBS), progressive supranuclear palsy (PSP), and FTD with amyotrophic lateral sclerosis (FTD-ALS).

Registry participants have access to a private dashboard and a filterable clinical research study list and can also receive email newsletters about studies that match their interests. Additionally, the registry hosts an online research study. People who are eligible and choose to participate will be invited to complete surveys, share medical records or genetic test results, and more, to help researchers learn more about FTD disorders.

Recruit & Retain Participants manager@ftdregistry.org 2025-10-23T00:00:00Z Registries Websites

External Link

FTD Disorders Registry website