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This article brings together the voices of a woman with Down syndrome, her caregiver, and two researchers to highlight the barriers to participation and offer insights for more inclusive trial design. The authors emphasize that meaningful progress requires treating people with Down syndrome as full partners in research through respectful communication, flexible scheduling, and transparent sharing of results.
Foye G, et al. Research should be conducted with us, not on us: Perspectives on Alzheimer's disease clinical trials for persons with Down syndrome . Alzheimers Dement Behav Socioecon Aging. 2025 Dec;1(4):e70040. doi: 10.1002/bsa3.70040.
Educate & Raise Awareness Recruit & Retain Participants 2026-03-05T00:00:00Z Down Syndrome Research Articles