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Update consensus on AD/ADRD nomenclature necessary to identify target populations for intervention research; clarify role of symptom presentation and presence of biomarkers in new nomenclature. Determine impact on patient/clinician communication about dementia diagnosis and management. Determine impact on public understanding about dementia.
2028 14.F In Progress Update consensus on AD/ADRD nomenclature necessary to identify target populations for intervention research... DN 2017 Dementia Care Summit: 6.1, 6.2, and 6.3 News: Guidelines proposed for newly defined Alzheimer's-like brain disorder News: New biological research framework for Alzheimer's seeks to spur discovery Workshop: Dementia Nomenclature Initiative Workshop (February 16, 2021) Public Private Partnerships Summit Virtual Meeting Series: 2020 National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers, Theme 4 on nomenclature and diverse research participation
- Completed consensus document reflecting research and clinician views on incorporating symptom and biomarker information.
- Conduct research in populations with varying educational, cultural, income and racial/ethnic backgrounds.
Summary of Key Accomplishments
An interagency Dementia Nomenclature workgroup has been established to facilitate cross-cutting stakeholder discussion on barriers, opportunities, and strategies to develop consistent, accurate, and meaningful language for cognitive impairment and dementia that is useable or at minimum interoperable among scientists, care providers and the public. The workgroup is comprised of non-federal and federal members, with NIH represented by NIA and NINDS. The workgroup held two workshops in 2021 to share their findings with NIH and other researchers and stakeholders.
The key accomplishments summary is current as of March 2022.