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Collaborate with external organizations to increase awareness of large-scale registries that encompass the spectrum of the disease from healthy and at-risk asymptomatic to symptomatic individuals from early midlife to late life willing to participate in clinical research aimed at AD and ADRD prevention and treatment.
2022 12.J Achieved Collaborate with external organizations to increase awareness of large-scale registries that encompass the spectrum of the disease ... DN 2018 AD Summit: 4Q Recruitment and Citizen Engagement Find Alzheimer’s Disease and Related Dementias Clinical Trials Dementia Research and Clinical Trials: Registries and Matching Services ADORE: Alzheimer’s and Dementia Outreach, Recruitment and Engagement Resources Alzheimer's Disease Research Centers Implementation and validation of an online caregiver and study partner portal for assessment of cognitive function in older adults 2015
Develop a central repository of AD and ADRD related registries and cohorts.
Demonstrate increased participation in registries.
Summary of Key Accomplishments
The NIA-supported International AD and ADRD Research Portfolio (IADRP) database that houses the AD/ADRD research portfolio comprised of over 40 funding agencies (federal and non-federal) in the US and internationally, provides a listing of all NIH-supported AD/ADRD cohort studies.
The key accomplishments summary is current as of March 2022.