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Pilot the use of electronic consent which provides participants an option for broad sharing of de-identified data in various types of clinical research on AD and AD-related dementias.
2030 PA-16-259: Inclusion of Mobile/e-Consents for Alzheimer's Disease Research (Admin Supp) PAR-18-749: Examining Diversity, Recruitment and Retention in Aging Research (R24) 12.E In Progress Pilot the use of electronic consent which provides participants an option for broad sharing of de-identified data... DN 2015 AD Summit Recommendations: 1C and 5H Blog: Team up to accelerate recruitment for aging research Recruitment and Citizen Engagement Participant-Centered Design for ADRC Informed Consent Emory Alzheimer’s Disease Research Center: Informed Consent Toolkit National Strategy for Recruitment and Participation in Alzheimer's and Related Dementias Clinical Research 2017
- Launch at least three clinical research studies with electronic consenting methods that give participants the option for broad sharing of de-identified data.
Summary of Key Accomplishments
Milestone goals are supported by two projects funded through the “Inclusion of Mobile/E-consent for AD research” initiative. The projects brought together clinical researchers from two NIA-supported AD Research Centers and a team of data scientists and participant engagement experts. This cross-disciplinary team developed an electronic consent process aimed at removing some of the key barriers to participants recruitment into clinical research for AD/ADRD.
The key accomplishments summary is current as of March 2022.