Convene a meeting with key stakeholders and organizations including representatives from the All of Us Research Program (formerly the NIH Precision Medicine Initiative) to discuss policies for streamlining and innovating patient/participant consent and data sharing.
2030 12.D To Be Initiated Convene a meeting with key stakeholders and organizations including representatives from the NIH Precision Medicine Initiative ... DN 2015 AD Summit Recommendations: 5G, 5H, and 5I Recruitment and Citizen Engagement 2016
- Align guidelines for streamlined electronic consenting and other consenting models that give ownership of health care data to patients and study participants with All of Us and FDA.
Summary of Key Accomplishments
This milestone has yet to be initiated. Accomplishments are forthcoming.
The key accomplishments summary is current as of March 2022.