Clinical Research Participation Among Aging Adults Enrolled in an Alzheimer's Disease Research Registry

This study examined incentives and barriers to participating in Alzheimer’s disease clinical research among older adults. Two hundred thirty-five participants enrolled in the Boston University Alzheimer’s Disease Center research registry completed a survey assessing registry participation satisfaction, religiousness, trust in healthcare institutions, and medical research attitudes. Most participants reported initially enrolling in the registry for societal benefit. A commonly endorsed barrier to enrolling in additional center-approved studies was insufficient time; this response was most common among younger participants. Driving and a lack of transportation to the medical facility were other identified barriers to participation, particularly for older participants. Transportation was the most popular incentive, followed by home-based visits and compensation. Favorable attitudes toward medical research were strongly associated with interest in enrolling in additional studies.

Jefferson AL, Lambe S, Chaisson C, et al. Clinical research participation among aging adults enrolled in an Alzheimer's Disease Center research registry . Journal of Alzheimer's Disease 2011;23(3):443-52.

6f902036c15e5d7942f4c91d0a4eeb24 Recruit & Retain Participants 2019-01-14T00:00:00Z Barriers & Facilitators Registries Research Articles