NHGRI Data Sharing Governance Committee

Data Sharing
NHGRI Data Sharing Governance Committee

The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies. These activities include:

  • Promoting standard data sharing practices and operating procedures across NHGRI.
  • Ensuring that NHGRI data sharing practices comply with NIH policies.
  • Reviewing requests for exceptions to expectations for data sharing and alternative data sharing plans.
  • Managing the regular review and evaluation of the implementation framework, making recommendations to NHGRI leadership as needed, to ensure that practices remain current and connected to NHGRI data sharing policies.
  • Providing consultation for policy or practice development.

Roster

Erin M. Ramos, Ph.D., M.P.H. Co-chair
Division of Genomic Medicine

Barbara Thomas, Ph.D. (DAC Chair*) Co-Chair
Office of Genomic Data Science

Elena Valdez, M.A. Executive Secretary
Office of Genomic Data Science

Benjamin Solomon, M.D.
Division of Intramural Research

Lisa D. Chadwick, Ph.D.
Division of Genome Sciences

Rene Sterling, Ph.D., M.H.A.
Division of Genomics and Society

Mollie Minier, Ph.D.
Division of Genomic Medicine

Natalie Deuitch, M.S.
Division of Intramural Research

Kimberly Jacoby Morris, Ph.D.
Training Office

Sara C. Hull, Ph.D. (Bioethicist*)
NHGRI Bioethics Core

Sharna Tingle, M.P.H. (Senior GPA*)

Division of Extramural Operations

* The DAC Chair, GPA, and the NHGRI Bioethicist positions are standing positions

Liaisons and Committee Staff

Kris Wetterstrand, M.S. DEO Liaison
Division of Extramural Operations

Benjamin Berkman, J.D., M.P.H., Bioethics Liaison
NHGRI Bioethics Core

Laura Gorrell, Ph.D. Central Review Team Liaison
Office of Genomic Data Science

Karen Schandler. NISC Liaison
Division of Intramural Research