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The INCLUDE Project
The INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE Project launched in June 2018 to support the research on critical health and quality-of-life needs for individuals with Down syndrome.
Research Plan
The NIH INCLUDE/Down Syndrome (DS) Research Plan will help guide and coordinate NIH-wide research activities for the next five years.
Funding
Check out open funding opportunities, funded projects and learn about the Agency's funding priorities.
Data Sharing
Data management and sharing is a critical component of INCLUDE’s goal to accelerate discovery of etiology and biologic pathways underlying conditions that co-occur with Down syndrome.
Frequently Asked Questions
Find the answers to common questions about the INCLUDE Project and some associated programs.
Resources
NIH
- ClinicalTrials.gov – an NIH-managed database of publicly and privately sponsored clinical trials
- DS-Connect – a resource where people with Down syndrome and their families can connect with research, health care providers, and more.
- Down Syndrome Directions: NIH Research Plan on Down Syndrome 2014
- NIH Research on Down Syndrome
- INCLUDE Data Coordinating Center
- INCLUDE Data Hub
NIH Institutes and Centers
- National Institute on Aging: Alzheimer's Disease in People with Down Syndrome
- National Cancer Institute: Childhood Acute Lymphoblastic Leukemia Treatment
- National Heart, Lung, and Blood Institute: Sleep Apnea , Congenital Heart Defects
- Eunice Kennedy Shriver National Institute of Child Health and Human Development: Down Syndrome
- National Human Genome Research Institute: Learning About Down Syndrome
We Welcome Your Feedback
The INCLUDE Project is committed to advancing research to improve the health and well-being of individuals with Down syndrome (DS) across the lifespan. Lasting progress happens when we work together with families, self-advocates, researchers, and clinicians in the DS Community.
Please consider sharing your questions, feedback, ideas, or suggestions. We welcome responses in both English and Spanish. Your insights help guide INCLUDE priorities and ensure that our efforts remain responsive, inclusive, and impactful.