NIH Seeks Information to Empower Public Voices in Clinical Research

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NIH Seeks Information to Empower Public Voices in Clinical Research

Posted on June 12, 2024March 4, 2025

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NIH considers patients, communities, and other members of the public to be essential partners in research and is seeking public input on preferences, experiences, and recommendations relating to increasing public engagement in all phases of clinical research.

To accomplish this goal, NIH asked the Novel and Exceptional Technology and Research Advisory Committee (NExTRAC) to form the ENGAGE Working Group, which includes patients, advocates, researchers, clinicians, non-profit representatives, and more. Today, NIH is launching the first phase of public outreach via a host of events and resources.

Upcoming Events and Resources

• The new NIH ENGAGE webpage contains background information about clinical research engagement, the Engage Working Group, upcoming NIH events, and more.

• NIH released a request for information today seeking public feedback to inform the efforts of the ENGAGE Working Group.

• The NExTRAC will be meeting on June 17, 2024 to discuss the Engage Working Group’s progress to date.

• NIH will be hosting an informational webinar related to the request for information on July 17, 2024, which will also include significant time for public feedback. More details will be provided shortly.

• Read our blog to learn more about clinical research engagement and the efforts of the Engage Working Group.

Questions may be sent to SciencePolicy@od.nih.gov.

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