NIH Jumpstarting Access to Clinical Data for COVID-19 Research Showcase 

12-4:30 p.m. ET

This event has been canceled.

The National Institutes of Health (NIH) Office of Data Science Strategy (ODSS) and the National Library of Medicine (NLM) are hosting a virtual “Jumpstarting Access to Clinical Data for COVID-19 Research Showcase” on Aug. 6 from 12 to 4:30 p.m. ET. This webinar will focus on accomplishments made over the past year in COVID-19 clinical data and research and will be a continuation of the Jumpstart Virtual Community Workshop held last year.

This showcase will feature progress in:

  • Data ingestion from a variety of data types and data sources
  • Data harmonization including the use of common data models and common data elements
  • Record linkage
  • Data governance, access, and use
  • Measures for data privacy, security, and confidentiality
  • Platforms and tools developed to enable COVID-19 research
  • Researcher access to COVID-19 clinical data and tools

Please direct any questions or comments to datascience@nih.gov.

Individuals who need reasonable accommodations to participate in this event should contact the ODSS at datascience@nih.gov or the Federal Relay Service at 800-877-8339. Requests should be made at least 10 days in advance of the event.

Draft Agenda

Start Time (EDT)TopicPresenter
12:00 P.M.WelcomePatricia Flatley Brennan, R.N., Ph.D.Director, NLM, NIH
12:05 P.M.Opening RemarksLawrence Tabak, D.D.S., Ph.D.Principal Deputy Director, NIH
12:20 P.M.BioData CatalystAccelerating Post-Acute Sequelae of COVID-19 (PASC) Research by Populating Electronic Case Report Forms from Electronic Health Records (EHRs): Application to the NHLBI MUSIC cohort – Long Term Outcomes after the Multisystem Inflammatory Syndrome in Children (MIS-C)Alastair Thomson (Moderator)Chief Information Officer, National Heart, Lung, and Blood Institute (NHLBI), NIH
Paul Avillach, M.D., Ph.D.Assistant Professor of Biomedical Informatics, Harvard Medical School
12:50 P.M.Consortium for Clinical Characterization of COVID-19 by Electronic Health Record (4CE)Predicting Severity and Identifying PASCGriffin Weber, M.D., Ph.D. (Moderator)Associate Professor of Biomedical Informatics, Harvard Medical School
Gabriel Brat, M.D.Assistant Professor of Surgery, Beth Israel Deaconess Medical Center, Harvard University
1:20 P.M.Break
1:35 P.M.All of Us ResearchAll of Us Research and PASCChris Lunt (Moderator)Chief Technology Officer,All of UsResearch Program, NIH
Paul Harris, Ph.D.Professor, Department of Biomedical Informatics, Vanderbilt University Medical Center
2:05 P.M.National COVID Cohort Collaborative (N3C)and The COVID Digital Pathology RepositoryLinking Imaging and EHR data for Longitudinal ResearchKen Gersing, M.D. (Moderator)Director of Informatics, National Center for Advancing Translational Sciences, NIH
Fred Prior, M.D.Chair of Department of Biomedical Informatics, University of Arkansas for Medical Sciences
Stephen Hewitt, M.D., Ph.D.Head of Experimental Pathology Laboratory, Center for Cancer Research, National Cancer Institute (NCI), NIH
Janelle Cortner, Ph.D.Director, Data Management Program NCI, NIH
3:05 P.M.Break
3:20 P.M.Institutional Development Award (IDeA) Networks for Clinical and Translational Research (IDeA-CTR)COVID-19 Outcomes in Rural AmericaMichele McGuirl, Ph.D. (Moderator)Chief of Research Advancement Programs Branch, Division of Research Capacity Building, National Institute of General Medical Sciences, NIH
Clifford Rosen, M.D.Director of Clinical and Translational Research, Maine Medical Center Research Institute
3:50 P.M.Panel Discussion with Drs. Paul Avallich, Gabriel Brat, Paul Harris, Fred Prior, Janelle Cortner, and Clifford RosenSally Hodder, M.D. (Moderator)Associate Vice President for Clinical and Translational Science and Director, West Virginia Clinical & Translational Science Institute, West Virginia University
4:20 P.M.Closing RemarksSusan Gregurick, Ph.D.Associate Director of Data Science and Director, ODSS, NIH
4:30 P.M.Adjourn