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This page provides FAQs and details about the NIH Office of Data Science Strategy's (ODSS) Notice of Special Interest (NOSI) (NOT-OD-23-044). The NOSI aims to support and strengthen existing NIH-funded biomedical data repositories in adopting FAIR and TRUST principles to improve data usage, utility, and impact. The page also features a list of awarded projects, including their principal investigators, institutions, project titles, and links to their respective repositories.
The National Institutes of Health’s (NIH) Office of Data Science Strategy (ODSS) recently announced a Notice of Special Interest (NOSI) to strengthen NIH-funded biomedical data repositories to better enable data discoverability, interoperability, and reuse by aligning with the FAIR and TRUST principles and using metrics to measure their effectiveness (NOT-OD-23-044). The intent is to provide an opportunity for existing repositories of all sizes, and at different stages of establishment, to increase “FAIR”-ness and “
Please refer to this site regularly for updates to frequently asked questions (FAQs) and other announcements related to this NOSI.
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| Principal Investigator | Institution | Project Title | Repository Weblink |
|---|---|---|---|
| Eric Ravussin, Ph.D. | Louisiana State University | Improving FAIR-ness and TRUST-worthiness of the Pennington/Louisiana NORC Biorepository | https://my.pbrc.edu/NORC/NORCRepository/Landing |
| Chris Rorden, Ph.D. | University of South Carolina | Public Sharing of the Aphasia Recovery Cohort | https://github.com/rordenlab/AphasiaResearchCohortQuery |
| Molly A. Bogue, Ph.D.; | The Jackson Laboratory, Bar Harbor, Maine, USA | Mouse Phenome Database: Making it More FAIR-compliant and TRUST-worthy | |
| Nadine Martin, Ph.D., CCC-SLP | Temple University | Translation and Clinical Implementation of a Test of Language and Short-term Memory (STM) in Aphasia: The CORE-APHASIA Collaboratory: Advancing Robust Data Science & Sharing (CARDS) | https://hope2.monqcle.com/ |
| Vikash Gilja, Ph.D. | University of California, San Diego | Data Repository for “CRCNS: Avian Model for Neural Activity Driven Speech Prostheses” | |
| Joshua Orvis, M.S. | Institute for Genome Sciences, University of Maryland School of Medicine | Advancing FAIRness and TRUST in the gEAR portal | www.umgear.org |
| Brian MacWhinney, Ph.D. | Carnegie Mellon University | Improve the Compliance of the CHILDES Project Database with the FAIR and TRUST Principles | https://talkbank.org |
| Carl Kesselman, Ph.D., M.Eng. | University of Southern California | FaceBase Data Hub: Enhancing TRUST-worthiness of the FaceBase Research Data Hub | https://www.facebase.org |
| Linda Brzustowicz, M.D., FAPA | Rutgers University | Enhancing Alignment of the NRGR with FAIR and TRUST Principles | https://www.nimhgenetics.org/ |
| Dalane Kitzman, M.D. | Wake Forest University School of Medicine | Enhancing an Integrated Data Bank for Aging Studies | https://www.peppercenter.org/public/dsplASDR.cfm |
| Carol Bult, Ph.D.;\ | The Alliance of Genome Resources and the Mouse Genome Database The Jackson Laboratory | Aligning the Alliance of Genome Resources with FAIR and TRUST principles | http://informatics.jax.org https://alliancegenome.org |
| Jeffrey Grethe, Ph.D. | University of California, San Francisco | Open Data Commons for Traumatic Brain Injury (ODC-TBI) | https://odc-tbi.org |
| Darrell Hurt, Ph.D. | National Institute of Allergy and Infectious Diseases, National Institutes of Health | Increased Interconnectivity for Database of Antimicrobial Activity and Structure of Peptides (DBAASP) | https://dbaasp.org |
| Meghan McCarthy, Ph.D. | National Institute of Allergy and Infectious Diseases, National Institutes of Health | Making 3D Data “FAIR” with NIH 3D | |
| Quan Chen, Ph.D. | National Institute of Allergy and Infectious Diseases, National Institutes of Health | Project: ‘FHIR’ing up ImmPort: Improving Interoperability of ImmPort Data | https://www.immport.org/home |
| Rebecca Rodriguez, Ph.D. | National Institute of Diabetes and Digestive and Kidney Diseases, National Institutes of Health | Applying FAIR and TRUST Principles for Enhanced Resource Sharing and Sustainable and Reliable Repository Operations | https://repository.niddk.nih.gov/home/ |
| Jennifer Fostel, Ph.D | National Institute of Environmental Health Sciences, National Institutes of Health | Ensuring FAIR and TRUST for High-dimensional Environmental Study Data | https://cebs.niehs.nih.gov/cebs/ |
Contact Information
For more information, please contact reposupport@nih.gov.
FAQs: NOSI to Support FAIR Biomedical Repositories