Archived Clinical Research Datasets

Important Information

This repository is under review for potential modification in compliance with Administration directives.

The data from NINDS-supported clinical trials are an important scientific resource, made available to the wider scientific community, while ensuring that the confidentiality and privacy of study participants are protected. NINDS requires all investigators seeking access to data from archived NINDS-supported trials to agree to certain terms and conditions.

Updates on Data Request

The Archived Clinical Research Datasets will soon be migrated to new repositories. This migration is currently underway. If you need access to these datasets, please contact the Principal Investigators (PIs) of the respective studies.

We expect the migration to be completed by the end of 2026. Updates, including links to the new repository locations, will be posted on our website as they become available.

NINDS Dataset Citation

It is important to acknowledge the contributions of the researchers who generated the data. NINDS asks all data recipients to use one of the two provided citation statements when publishing new analyses based on received datasets.
  1. This research is based on the National Institute of Neurologic Disease and Stroke’s Archived Clinical Research data (Full Title, PI, and grant number) received from the Archived Clinical Research Dataset webpage .
  2. The (Full Title, PI, and grant number) data and analyses presented in this (manuscript/poster/publication) are based on the research files downloaded from the Archived Clinical Research webpage of the National Institute of Neurologic Disease and Stroke.

Procedures for Requesting Archived Datasets

The Archived Clinical Research Datasets are currently being migrated to new repositories, and data requests will no longer be accepted. If you require access to these datasets, please contact the Principal Investigators (PIs) of the respective studies.

We expect the migration to be completed by the end of 2026. Updates, including links to the new repository locations, will be posted on this webpage as they become available.

Procedures for Submitting Datasets

The Archived Clinical Research Datasets will no longer receive data for archiving. Please discuss where to deposit your data with your Program Official (PO).

Questions?

Please e-mail us at NINDS Clinical Research Liaison .

Additional NIH/ NINDS data and biorepositories

Archived datasets are no longer available. Links to the new repository locations, will be posted on this list as they become available: